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A Post for Those Who Are Responsible for the Care of a Loved One

by Cathy on June 7, 2012

If you have read my blog for the past year or two or are a Face Book friend you may know that I have an elderly mother who has dementia. She still remembers family members and past life experiences and enjoys her days in the assisted living community where she lives.  Many of her needs are taken care of there, but it is my responsibility to coordinate her care among her various providers.  She has doctors appointments that need to be made and kept, personal items that need to be routinely purchased,  family visits  coordinated, bills paid, shoes and clothing updated, dozens of issues that need follow up,  the list goes on and on.  I have routine meetings with the staff where she lives and all that information needs to be kept in an orderly and easily accessible way along with her weekly appointments for personal needs like hair cuts, nail care, massages, etc. I was overwhelmed by this responsibility 16 months ago when my dad passed away and have been trying to do my best with all this responsibility since that time.  If all of this sounds like a huge task, believe me it is.

A few weeks ago I received an email from my friend Jeni, The Blog Maven, my blog designer.   She knows that I care for my mom and asked me if I would be willing to review a product that she was working on that might make my life a little easier.  Her clients, Susan McArthur, an RN, and Joy Rodriguiz, a professional organizer, have a company named Un Souci (meaning “to worry” or “show concern”) and they have designed and assembled a workbook for people in my circumstances who are responsible for the care of someone else, whether that person (young or elderly) lives at home or is in a care facility like my mom is. I liked the concept and immediately agreed to take a look.

 

Organization for Caregivers

 

I was so impressed by the content and organization of their binder.  I have almost all my mother’s health information in my binder now and can see that this aspect of my life is going to be a lot easier.  Un Souci binders are available as downloads (which is what I chose) and a printed notebook version is available as well if you prefer it.  If you click on the above badge and go to their website you can review the contents and even download a few pages. Binders are customized to meet the needs of children and adults.

If you have responsibility for overseeing the health care needs of another person I can promise you that Un Souci will make your life easier.  I work and am occasionally out of town and I am confident that any friend or family member could pick up my binder and know how to step in and take care of my mother’s needs.  That’s a lot of peace of mind in a stressful situation.

I have several health issues of my own and as I was assembling my mother’s binder I realized that I need one for myself in case  my children have to help with my medical needs someday.  It would save them hours of stressful searching if they needed my medication list, my doctors’ contact numbers, insurance information, etc. It would be a loving gift to give them that they won’t really appreciate until the day they might need it.  An Un Souce binder would also be a wonderful gift for a friend who has the responsibility of caring for a loved one.

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{ 18 comments… read them below or add one }

Susan June 7, 2012 at 6:14 am

Cathy, how fortunate you came across this wonderful organizer. I think of you often and realize the stress you are going through. I pray this will make things a slight bit easier for you and yours. God Bless. Susan
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Cathy June 7, 2012 at 6:22 am

Thank you so much, Susan. I’m a person who really likes to be organized and this binder made a huge difference in my stress level. I’m grateful that I can be here for my mom when she needs me.
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Carol @ Always Thyme to Cook June 7, 2012 at 7:03 am

This is a wonderful thing! I could have used something like this. And it would make it a lot easier for my kids to be able to have all that info in one place. It would be good for me, too :)
You’re mom is very lucky to have you there for her. Sending best wishes.
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Cathy June 7, 2012 at 10:18 am

Thank you, Carol. When I started to pull my personal information together there was a lot more than I would have guessed, things my family would have a challenge tracking down. If a loved one has passed away many people won’t release any information right away. This binder is the place for copies of advance directives and names of banks, attorneys, etc. I have seen what headaches these matters can cause for families who don’t have all necessary information.
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Bonnie June 7, 2012 at 7:30 am

This is an idea that is long overdue. Thanks for introducing it.

Best,
Bonnie

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Barbara June 7, 2012 at 8:37 am

Cathy, this book is wonderful. I’m going to order one so my kids will know everything.

I know what you’re going through as I went through this with my parents during the 90′s. They stayed at home and we got a housekeeper, but I did all the work…doctors, food, etc. It was a tough 10 years as it was a 45 minute drive each way to Ft. Lauderdale. I gave up all the activities in my life. Fortunately, I have no husband and my kids are grown so it was a bit simpler than it is for most. I also lost my dearest friend to cancer right in the middle of it.
Take time for yourself and hang tough. I had a sister in Michigan I called each day and talking to her helped me get through it.
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Pondside June 7, 2012 at 12:01 pm

Thank you for sharing this, Cathy. Being with my parents for the winter, every year, I notice the changes in my mother, who is gradually losing her memory. I will have a close look at this, in anticipation of the day that will come, when I’ll be helping my mum more than is necessary today.

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Sam @ My Carolina Kitchen June 7, 2012 at 12:36 pm

What a fabulous and much needed book. I had no idea of your responsibilities with your mother Cathy. My heart goes out to you. I know your mom must be so grateful to know you are there for her. I wish we had had such a book when my parents as well as my husbands parents were alive. I will make a note of this to share with others when the need should arise. Thanks.
Sam
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Pam June 7, 2012 at 1:11 pm

Cathy, what a great book for organizing all of your mother’s info! Too bad this wasn’t around when my parents and hubby’s also were still living; I certainly could have put it to good use! Here’s wishing you and your mother the best through this journey. Take care…

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Monique June 7, 2012 at 2:25 pm

Do you hear me clapping ?

I admire you ..and I think my husband and I would have done the same thing and been caregivers..we never had the chance..I know for a fact..it runs in the family and I am grateful.
It must be very difficult..this week’s Time Magazine has a very good story about a man losing his parents after many years of dementia and the caregiving…involved.

I never knew you had health issues..You blog so perfectly and w/ such enthusiasm and stability..one would never know..
I wish you well.
All this cannot be easy~
I lost my mom when I was 19..I’d do anything to have more years with her.
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Rhonda (@diningalone) June 7, 2012 at 4:06 pm

What a great idea, especially keeping one for yourself for others to have ‘just in case’.
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Arlene June 7, 2012 at 4:52 pm

I sure wish I’d had this when my mom was alive. As her primary caregiver, I had to “invent” things as I went along. I’m sure this will help many people.
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Marilyn June 7, 2012 at 4:53 pm

What a wonderful idea. Thanks for sharing! I am going to mention this to my sister-in-law.
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Inspired by eRecipeCards.com June 8, 2012 at 4:51 am

Great post, great information and so many best wishes for you, your mother and the situation

Dave
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Karen (Back Road Journal) June 8, 2012 at 7:32 am

Thank you Cathy, for sharing this information. Unfortunately many of us have been or will be in this same situation. It can be very difficult and I really think this book will make a bad situation a little easier to handle.
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Gail @ Faithfulness Farm June 8, 2012 at 1:55 pm

First Cathy — Bless you! What a large responsiblity you have and what a wonderful way to honor your mom. My daughter is an RN working for an Assisted Living that deal only with memory patients. This product looks like a lifesaver for anyone who is a caregiver.

Have a great weekend.

Blessings!
Gail
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Magic of Spice June 8, 2012 at 3:09 pm

What a great post Cathy! I know how difficult it is to care for older loved ones, blessings!
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Pat June 9, 2012 at 7:32 pm

Cathy this sounds like a wonderful tool for everyone to use to record and organize their, or a loved one’s, medical records. I will definitely look into buying one for my husband and myself so my children will have access to all our medical information in case they need it. Thanks for this info and God bless you and your Mom.
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